Heading for an RP "Cure"?
There is a clinical trial going on from Neurotech called CNTF (ciliary neurotrophic factor) implant.
This implant is about a size of a single grain of rice. It is surgically placed into the eye. In it are CNTFs that are slowly released directly into the retina.
As always, hoping and praying for a "cure".
Labels: RP/Usher Syndrome
5 Comments:
hoping along with you....
Molly here, I am thrilled to read about this trial/phase II. This is not a cure, just something that will hold on what vision we have til a cure is found. No I am not in the trial. But I am encouraged with any research!!!!!!!!!!!!!!!!!!!!! This website has a nice drawing/picture showing the location of the implant. I shared with other family and friends. Aw gee I wish they would send a nice big donation to FFB.
Lime-Thanks. We need all the prayers and hope we can. RP is so little known compared to MS or Cystic Fibrosis.
Molly-Yes, it only retards the progression, but if it helps, then why not. I believe that they have all the people they need for the phase II/III trials. It filled up pretty fast. It's closed. They aren't accepting any more candidates for the trials. One eye gets the implant and the other eye gets an incision and stitches so that the person doesn't know which eye got the implant. I hear that lutein supplements, omega-3 fatty acids (fish oil, salmon, tuna), and vitamin A all retard the progression, too. You're right, it's not a cure.
Wow, here's hoping it shows good results.
Diesel-Me, too. Who knows, it could be what insulin shots are for the diabetic. I guess I could deal with that. But again, if it can slow down the progression, I could deal with that, too.
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