Literally Blindsided
Welcome! This blog reflects more or less my description of living with Usher syndrome, my CI (cochlear implant) journey, my guide dog journey, and any random thoughts I may want to post.
Saturday, April 26, 2008
About Me
- Name: Shari
- Location: the Midwest, United States
Living with a genetic disorder called Usher Syndrome Type II. It's a gamble-each parent must have the same gene to pass it on to the child. There's a one in four chance of passing it on. One is born with varying degrees of hearing loss and loss of sight caused by a retinal disorder called retinitis pigmentosa (RP).
Previous Posts
- Sweet Nothings in My Ear
- Another Reminder
- Brandy
- Pride and Independence
- Abuzz
- Cold Case Episode
- Reminder/Update
- Roll the Dice
- My Views
- TV Shows
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2 Comments:
Thank you for sharing that! Even though my daughter has a CI she is still Deaf - it doesn't change how she was born or who she is. We are involved in our local Deaf community and I am so blessed that no one looks at her other than being Deaf. No one as far as I know looks down on her for having the implant.
We work very hard in our house to keep the Deaf culture alive and I'm sure that we are not the only ones. Rebecca is Deaf and will always be Deaf/blind, nothing is going to change who she is - not even an implant!
I've always thought that there's a happy medium with sign language and being oral. Why not use both. I think either method would be a great back-up tool. If I don't understand something, my daughter fingerspells. That helps. I am culturally hearing, but I am glad that I know signs, even though I am not fluently ASL. :)
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