Literally Blindsided
Welcome! This blog reflects more or less my description of living with Usher syndrome, my CI (cochlear implant) journey, my guide dog journey, and any random thoughts I may want to post.
Sunday, September 02, 2007
About Me
- Name: Shari
- Location: the Midwest, United States
Living with a genetic disorder called Usher Syndrome Type II. It's a gamble-each parent must have the same gene to pass it on to the child. There's a one in four chance of passing it on. One is born with varying degrees of hearing loss and loss of sight caused by a retinal disorder called retinitis pigmentosa (RP).
Previous Posts
- Another FM System Update :)
- Note to Self...
- Woman-child
- Labor Day
- A TImely Quote
- Tagged Myself Again
- Tech Support
- Scary
- One Step at a Time
- Heading for an RP "Cure"?
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7 Comments:
Your Dad was handsome. Hold on to the special and fun memories of him. I am sure he is looking down from Heaven saying he is so proud of you and your family. HUGS, Molly CC
Thank you, Molly. I am sure of that, too. :)
Happy Birthday!
This is a reminder to me that although sometimes they drive me nuts, my parents won't be around forever. Thank you for the wake up call.
Michelle- :)
Sue-It's always that way. You take them for granted. One day they aren't going to be there anymore. I still have my mom, though I don't see her as much as I used to. Most of it is because I don't drive anymore and she is living with my sister and her husband. It would be a lot of walking to get there.
I look at this photo and try to envision him animated and moving and talking.
That's what your memory is for, I guess.
Lovely moment for him.
Jocelyn-I never thought about that. My memories of him are like that, but if I look at someone else's pic of a loved one who has passed on, I really didn't do that. I will have to keep that in mind.
In Ink-:) Thanks.
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