Literally Blindsided
Welcome! This blog reflects more or less my description of living with Usher syndrome, my CI (cochlear implant) journey, my guide dog journey, and any random thoughts I may want to post.
Wednesday, May 16, 2007
About Me
- Name: Shari
- Location: the Midwest, United States
Living with a genetic disorder called Usher Syndrome Type II. It's a gamble-each parent must have the same gene to pass it on to the child. There's a one in four chance of passing it on. One is born with varying degrees of hearing loss and loss of sight caused by a retinal disorder called retinitis pigmentosa (RP).
Email
- Shari-me, of course
- Hubby - self-explanatory
- "Flare" - teenaged daughter with mood swings
- "Angel" - tween daughter...don't let the name fool you
- "Onyx" - our black Lab
- "Topaz" - our German Shorthair
- All others with small roles get labels (gramma, aunt, sister, friend, etc)
- Boys Town
- Foundation Fighting Blindness
- National Eye Institute
- NIDCD
- GDF-Guide Dog Foundation
- Guide Dog Users, Inc-see link for all guide dog schools on their home page
- GEB-Guiding Eyes for the Blind
- Leader Dog
- Seeing Eye
- ...a work in process...
- Blind Insight
- Chronicles of a Bionic Woman
- Darran's Blog
- Deaf Village
- Ear of My Heart, The
- Growing Up Hard of Hearing in a Hearing World
- Hear No Evil, See No Evil
- I'm Adopting a Deaf Child with Ushers, Now What
- Just Another Cyborg
- Laurie's Dance With Sound
- Metal Postcard
- Skull Chick
- Sudden Silence
- Surround Sound
- Tactile the World
- A Breazy Life
- BooksETC
- Brite Hope
- Chrystalis Stage, The
- Crooked Shall Be Made Straight, The
- Eve's Lungs
- Full Soul Ahead
- I Promise Not to Laugh During the Seance
- Life on a Hill
- Mom to 3 Cubs
- NURSERATCHED
- Word Imperfect
- Yesu Garden
- Everyday is Thanksgiving Day
- Guide Dog Manners
- Behind the Scenes Look at Guide Dogs
- The Right Thing
- Pride and Prejudice
- Another Driver
- False Sense of Security
- Map Time
- Two-week Map of Second CI
- Alvination
- September 2006
- October 2006
- November 2006
- December 2006
- January 2007
- February 2007
- March 2007
- April 2007
- May 2007
- June 2007
- July 2007
- August 2007
- September 2007
- October 2007
- November 2007
- December 2007
- January 2008
- February 2008
- March 2008
- April 2008
- May 2008
- June 2008
- July 2008
- August 2008
- September 2008
- October 2008
- November 2008
- December 2008
- January 2009
- February 2009
- April 2009
- May 2009
- July 2009
- August 2009
- October 2009
- November 2009
- February 2010
- April 2010
- June 2010
- September 2010
- October 2010
- November 2010
- July 2011
- August 2011
- September 2011
- October 2011
- January 2012
- April 2012
- November 2014
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Meet the Family
Fave Quotes
"Not everything that can be faced can be changed, but nothing can be changed until it is faced."-James Baldwin
"The longer we dwell on our misfortunes, the greater is their power to harm us."-Voltaire
"The human spirit is stronger than anything that can happen to it."-George C. Scott
"You know you've read a good book when you turn the last page and feel a little as if you have lost a friend."-Paul Sweeney
Thank you, Laura
Thank you, Karma
Thank you, Amrita
Thank you, Karen
Thank you, Kacie
Thank you, Breazy
Usher Syndrome Resources
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Other Hard of Hearing, CI, and/or Usher Syndrome Blogs
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