tag:blogger.com,1999:blog-33891938.post3956761917381392026..comments2023-09-06T05:00:24.861-05:00Comments on Literally Blindsided: It's MEME TimeSharihttp://www.blogger.com/profile/14743533586969447238noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-33891938.post-50421726046065389452007-10-28T19:25:00.000-05:002007-10-28T19:25:00.000-05:00Thanks G and Amrita. I guess the main thing I want...Thanks G and Amrita. I guess the main thing I want to get across is that I don't want pity. I just "do". At times I can be almost "normal", but what then, what is "normal"?<BR/><BR/>Cip-Well, I am not forgetting that I am a Cheesehead. It was just not part of "about my writing" meme. :) But I understand what you mean. Appleton, huh? Home of Houdini. OOoooOhhh.Sharihttps://www.blogger.com/profile/14743533586969447238noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-69597742609052763742007-10-28T19:15:00.000-05:002007-10-28T19:15:00.000-05:00There is one thing you do not address.Hmmm... is i...There is one thing you do not address.<BR/>Hmmm... is it true that Wisconsin-ites are sometimes referred to as "Cheeseheads"?<BR/>I am currently reading John Irving's novel <I>The Fourth Hand</I> and much of it takes place in the hometown of a die-hard Green Bay Packers fan.... the place is Appleton.<BR/>And he says that Wisconsinites are known as Cheeseheads.<BR/>sincerely,<BR/>Cip, a Canadian Ciprianohttps://www.blogger.com/profile/00254338542624853230noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-71016802168358546112007-10-18T09:39:00.000-05:002007-10-18T09:39:00.000-05:00You are a super writer. I 'd give you the blog-equ...You are a super writer. I 'd give you the blog-equavalent of the Booker Prize.he way you wrote aboute US made me get in touch with my feelings and disabilityAmritahttps://www.blogger.com/profile/04887884977787790642noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-91542460758873484692007-10-17T21:18:00.000-05:002007-10-17T21:18:00.000-05:00I am glad that you share about Ushers. I particul...I am glad that you share about Ushers. I particularly like how you write about your life and Usher Syndrome in a straightforward way. I don't pity you but I am certainly moved by your struggles. You are a very strong person, Shari. I, for one, am glad that you do hit the "publish" button.Ghttps://www.blogger.com/profile/16075495407192340894noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-47535883574211017012007-10-16T19:43:00.000-05:002007-10-16T19:43:00.000-05:00Breazy-Thanks for stopping by. I hope you have a g...Breazy-Thanks for stopping by. I hope you have a great week, too. :)<BR/><BR/>MrsGrumpy-Thanks. I see so many other bloggers who are good writers. We each have a story to tell, whether it's about our lives or fictional. :) I am glad you find it interesting and informative. Usher syndrome is relatively unknown; it's so rare. You'd think I'd hit the lottery because it's like beating the odds of Sharihttps://www.blogger.com/profile/14743533586969447238noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-66090623404319175752007-10-16T14:27:00.000-05:002007-10-16T14:27:00.000-05:00I find your posts about Usher Syndrome to be inter...I find your posts about Usher Syndrome to be interesting and informative. I have learned a lot here. I also think you are a wonderful writer.Laurahttps://www.blogger.com/profile/10242720787149022301noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-4273786135290777802007-10-15T21:57:00.000-05:002007-10-15T21:57:00.000-05:00hey Shari! How are you? I am okay, just making my ...hey Shari! How are you? I am okay, just making my way around my blog roll to check in on everyone. <BR/><BR/>Hope you have a good week!Breazyhttps://www.blogger.com/profile/01674200910146493711noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-1924402940498926352007-10-15T10:59:00.000-05:002007-10-15T10:59:00.000-05:00Beth-That's all right. Take all the time you need ...Beth-That's all right. Take all the time you need to do the tag. Thanks for the encouragement. <BR/><BR/>Thanks, Michelle, I'm glad you think so. It keeps me going. This is my way of advocating for now. So many people don't even know what RP or Usher syndrome is.Sharihttps://www.blogger.com/profile/14743533586969447238noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-56840079920436882032007-10-15T08:31:00.000-05:002007-10-15T08:31:00.000-05:00Keep writing! When you open up understanding and c...Keep writing! When you open up understanding and compassion for one disability you open these things up for all. <BR/><BR/>Great post Shari!Michelle O'Neilhttps://www.blogger.com/profile/03221354521123541601noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-89998183519637865252007-10-15T07:05:00.000-05:002007-10-15T07:05:00.000-05:00You write so well and so informatively. The perso...You write so well and so informatively. The personal information you share enables others to understand - you educate us.<BR/><BR/>As for the tag - will do, but it may take me awhile!Bethhttps://www.blogger.com/profile/14110235078325434919noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-69351598374192719652007-10-15T06:52:00.000-05:002007-10-15T06:52:00.000-05:00Molly-Thanks. I get quarterly newsletters from FFB...Molly-Thanks. I get quarterly newsletters from FFB and I see all kinds of improvements/ongoing research. Sometimes it's so easy to deny our vision loss, but when I bang into something, I get a cruel reminder (i.e., stubbed toe because someone "forgot" to push the kitchen chair in, a door that's ajar, walking into someone...)<BR/><BR/>Hillgrandmom-I'm glad you think so. I think about that post I Sharihttps://www.blogger.com/profile/14743533586969447238noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-24762388801598094322007-10-15T03:31:00.000-05:002007-10-15T03:31:00.000-05:00that was well written Shari. I don't think what y...that was well written Shari. I don't think what you write about your Usher's syndrome is too much. There may be so many others out there with other forms of disability or even just feeling low, who would be inspired by how you deal with your life. If someone who is uncomfortable with any kind of disability, stumbles across this blog, I guess they should stumble out fast. *hugs* to you.hillgrandmomhttps://www.blogger.com/profile/01805698959846687562noreply@blogger.comtag:blogger.com,1999:blog-33891938.post-40126583242268694112007-10-14T21:22:00.000-05:002007-10-14T21:22:00.000-05:00You are a great writer and I need you. Yes it is ...You are a great writer and I need you. Yes it is scary about OUR ever narrowing vision loss. Lots of time I go through the YES and NO stage that I have this Usher 2 . Then I bump into something. Darn, rats, phooey yes I have it. I am glad to read about you counting steps in a 2 story home , and not seeing someone reaching out to shake hands . I am thrilled I have YOU, and also Anonymousnoreply@blogger.com